Charles Brummell: 2026 Lupus Walk Ambassador

 In Links to Lupus News, Story Sharing Project

What is your connection to lupus?
My wife, Shirley, has lupus.

When was the lupus diagnosis?
I was introduced to lupus when my wife was diagnosed in early 2001. The correct diagnosis was determined by our primary care physician, and we were referred to Dr. Robert Katz, who continues to be her lupus specialist today.

The disease severely affected her kidneys and heart, and she was seriously ill during the first four years following her diagnosis.

Although you don’t have lupus, how has the diagnosis changed your life?
I became a full-time caregiver and became actively involved with the Lupus Society of Illinois.

How has life changed for the individual you care about with lupus?
In 2005, Shirley received a kidney transplant, which allowed her life to return to a more normal pace and greatly improved her quality of life.

How did you find the Lupus Society of Illinois?
My family’s journey with lupus led me to become involved with the Lupus Society of Illinois. In April 2010, I became President and CEO and had the privilege of working alongside a dedicated staff to provide programs, education, and support services to the lupus community.

What would you want the world to know about lupus? Why?
“Lupus is a very serious disease. It can attack many parts of the body. People with lupus can, however, live long and productive lives.”

Charles hopes that greater awareness and understanding of lupus will help individuals and families facing the disease feel supported and encouraged. While lupus can be life-changing, advances in treatment, strong medical care, and community support can help people with lupus live fulfilling lives.


Caregiver Spotlight: Charles Brummell
For more than two decades, Charles has supported his wife, Shirley, through her lupus journey. As a caregiver, advocate, and former President and CEO of the Lupus Society of Illinois, he has dedicated himself to helping others affected by lupus. His story is a reminder that lupus impacts entire families, and that caregivers play a vital role in providing strength, hope, and support. 💜

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