Olive Wassen: 2025 Lupus Walk Ambassador

Lupus warrior, LSI Associate Board member, Western Suburbs Walk Committee member, an all-around lupus awareness educator and advocate

Tell Us About Your Lupus Diagnosis
I’ve lived with lupus for as long as I can remember. With a strong family history of the disease, I was tested early and often, leading to a relatively quick diagnosis. In that sense, I consider myself fortunate—I’ve been spared the long, confusing diagnostic journey that so many others with lupus face. I recognize that early diagnosis is a privilege not everyone has.

Tell Us About Living with Lupus
Because lupus has always been a part of my life, it’s shaped how I approach each day. Most of the women in my family have lupus, so I grew up understanding the rhythms and realities of living with a chronic illness. Some days, fatigue or flares catch me off guard—triggered by changes in weather, routine, or seemingly nothing at all. But thanks to the wisdom passed down through generations, I’ve learned how to listen to my body and manage those moments with care and resilience. I do my best not to let lupus slow me down.

Tell Us About Family and Support
I have three close relatives with lupus, including the matriarch of our family—my grandmother. She was a model of strength and grace, teaching us how to care for our bodies, advocate for ourselves, and live full, joyful lives despite the challenges of this illness. In our family, supporting one another comes naturally. I’ve accompanied relatives to appointments since I was young, and in turn, they’ve guided me with their lived experiences. That shared knowledge has made all the difference in my journey.

Tell Us About Becoming Involved with LSI
I found the Lupus Society of Illinois (LSI) while searching for community—people who truly understand the ups and downs of life with lupus. I was drawn to LSI because it’s local, welcoming, and deeply rooted in connection. I applied to the Associate Board on a whim, and I’m so grateful Lisa reached out to me. Through LSI, I’ve made meaningful friendships, found a supportive network, and had the opportunity to get involved in ways that matter. I especially love being part of the Walk Committee, where we get to see our efforts directly benefit the community.

Tell Us About Your Goals as a Team Captain
This year, my goal is to raise at least $1,000 for LSI and to increase awareness of the vital work this organization is doing across Illinois. It’s so important for people to understand lupus—not just the medical side, but the emotional and social aspects too.

Tell Us About The Importance of Raising Awareness
One of the biggest challenges we face is that lupus is often invisible. A person may look fine but be battling an intense flare. That disconnect between how we feel and how we’re perceived can be incredibly frustrating. Greater public awareness would go a long way in helping those with lupus feel seen, heard, and supported.

Tell Us How LSI Has Helped You
LSI has expanded my circle beyond family, connecting me with others who truly understand what it means to live with lupus. While my family has always been open about the illness, there’s something uniquely uplifting about knowing you’re part of a broader, compassionate community. I’m proud to be involved with LSI and grateful for the sense of belonging it has brought into my life.