Share Your Lupus Story

 In Links to Lupus News, Research Abstracts & Articles, Story Sharing Project

The National Collaborative for Education to Address the Social Determinants of Health (NCEAS) is planning for their annual conference in April here in Chicago.

This will include a Story Slam session. For those not familiar, Story Slams are events that celebrate storytelling by providing an opportunity for participants to verbally share brief stories with an audience. For those practicing and studying health care, storytelling is an essential tool that can deliver a shared sense of meaning in our work and purpose. For the storyteller, this often requires taking a step back, reflecting, and discerning what is meaningful and inspiring about the experiences they have had.

They are seeking community members, patients, caregivers who may be interested in sharing their story. Their goal is to have members of the community bring in their patient or other perspective – to inform them as healthcare providers and students about the work they do and what they should do in the future.

Details: The Story Slam portion of their conference will be held on Tuesday, April 28th from 9:30-10:30 AM at the Shirley Ryan AbilityLab (355 E Erie) in Chicago. Each speaker will be given 10 minutes to share their stories. As compensation for their time and willingness to speak, they will receive a $100 honorarium at the end of the session. Additionally, their story will be filmed and an edited version may be shown on our website and other social media channels such as Twitter and YouTube. To learn more about the conference:

If you are interested yourself or know others who may be interested, please contact Clare Petrie ([email protected], 312.503.6269).

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