Living with lupus can be expensive.
A study published in Arthritis Rheumatology concluded that both direct health care costs and costs associated with changes in work productivity are substantial and both represent important contributors to the total costs associated with SLE.
Results stated that for the total population of participants, the mean annual direct cost was $12,643 (2004 US dollars). The mean annual productivity cost for subjects of employment age (≥18 and <65 years) was $8,659. The mean annual total cost (direct and productivity) for subjects of employment age was $20,924. Regression results showed that greater disease activity, longer disease duration, and worse physical and mental health were significant predictors of higher direct costs; older age predicted lower direct costs. Older age, greater disease activity, and worse physical and mental health status were significant predictors of higher costs due to changes in work productivity.
Resources exist to help combat costs of living with lupus, including:
- Living with Lupus Grant
- Modest Needs
- Needy Meds
- The HealthWell Foundation
- Single Mothers Grants Directory
- Patient Advocate Foundation
- Affordable Health Care Act
- Job Accommodation Network
- Social Security Disability
- Prescription Assistance
To combat expenses incurred by people living with lupus, we offer the “Living with Lupus Grant” to lupus patients in Illinois. The funds are paid directly to the vendor. Expenses paid by the grant include lupus-related medical expenses that would help alleviate some of the financial strain those living with lupus face.
The following are examples of appropriate requests:
- Blood work/lab tests
- Hospital bills
- Medical expenses not covered by insurance
About the Living with Lupus Grant
Grants are limited to one request per person during any twelve month period, with an annual maximum grant of $400. The only requirements to apply are proof of Illinois residency and a lupus diagnosis.
Founded in 2002, Modest Needs is a non-profit organization with a unique, threefold mission. Modest Needs exists (in part). To responsibly provide short-term financial assistance to individuals and families in temporary crisis who, because they are working and live just above the poverty level, are ineligible for most types of conventional social assistance but who (like many of us) are living one or two lost paychecks away from the kind of financial catastrophe that eventually leads to homelessness;
NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases. All our information is accessible online, at no charge and without registration.
The HealthWell Foundation is a leading non-profit dedicated to improving access to care for America’s underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses.
Listed here are financial assistance programs that help single mothers with rent, utility bills, child care, education, medication, housing, medical bills, and mortgage, among others.
Patient Advocate Foundation is a national 501 (c)(3) non-profit organization which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses
Affordable Health Care Act We pledge to put patients first in all of our programs – Medicaid, Medicare, and the Health Insurance Exchanges. To do this, we must empower patients to work with their doctors and make health care decisions that are best for them.
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.
The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program