Lupus News

Lupus Patients And The Vaccine Booster

By Dr. Robert Katz Medical Advisory Board Pharmacies are now offering booster shots for immunocompromised patients. Many lupus patients qualify because they are being treated with prednisone and other potentially immunosuppressive medications.  Now may be the best time to receive the booster vaccine, since pharmacies may start requiring scheduled appointments. You can take advantage of […]

COVID-19 Update – Delta Variant & Vaccine Information

By Dr. Robert Katz According to the CDC, the Delta variant of COVID-19 is more contagious – more than 2x as contagious as previous variants; some data suggest the Delta variant might cause more severe illness than previous strains in unvaccinated persons; unvaccinated people remain the greatest concern; fully vaccinated people with Delta variant breakthrough […]

SAPHNELO FAQ

What is SAPHNELO and how does it work?SAPHNELO is a first-in-class type I interferon (IFN) receptor antagonist, a human monoclonal antibody that binds to subunit 1 of the type I IFN receptor, blocking the activity of type I IFNs.1 Type I IFN are cytokines (cell signaling proteins) involved in a key pathway in lupus pathogenesis.2 […]

Europe has now approved the use of Benlysta to treat children with lupus

By Dr. Robert Katz Europe has now approved the use of Benlysta to treat children with lupus. Benlysta has the generic name belimumab. The “mab” at the end indicates it is a monoclonal antibody. That means it is a special antibody that is manufactured to antagonize some substance, and in this case it is called […]

Walk Ambassador Carissa Calascibetta

2021 Virtual run, WALK, ride ambassador, Carissa Calascibetta. LSI Associate Board member and walking for LSI Associate Board team. What kind of lupus do you have?I have SLE. When was lupus diagnosis?My lupus diagnosis was 3 years ago. How long did it take for a correct diagnosis?It took at least six years for a correct […]

A Patient Asks: Lupus & Cholesterol

LSI received the following question. Medical Advisory Board members facilitate answers to these questions. If you have a question, please forward it to info@lupusil.org or call 312-542-0002. Thanks to Dr. Shilpa Arora & Dr. Meenakshi Jolly for providing the answer to this patient’s question. Question: I would like to know how lupus might cause your […]

Lupus & Cancer Risk Article Review

By Dr. Robert Katz In a paper written by Rasmus, Westermann, and others, the authors ask the question as to whether cancer risk is increased in patients with skin lupus and systemic lupus compared to the general population. This is a Danish nationwide study. The authors conclude that the overall risk of cancer was significantly […]

Lupus & Pregnancy Article Review

By Dr. Robert Katz A research paper in the journal Lupus entitled, “The Importance of Pregnancy Planning in Lupus Pregnancies,” Rajendran, Euty, and other authors from Duke University Medical Center studied lupus pregnancy outcomes in those with planned pregnancies compared to those with unplanned pregnancies. The average age of the lupus women was 29.4 years, […]

Walk Ambassador Bill Evans & Patti Engstrom

2021 walk Virtual run, WALK, ride ambassadors, Bill Evans and Patti Engstrom, team captains of Evans and Engstrom Bike Team and an Executive Board member. Watch Bill & Patti’s 2020 interview here. What is your connection to lupus?On the LSI Board When was the lupus diagnosis?My family members were diagnosed Sister & Brother over 60 […]

Delayed Diagnosis Adversely Affects Outcome in Systemic Lupus Erythematosus: Article Review

By Dr. Robert Katz An article in the journal Lupus discusses delayed diagnosis. The conclusion of the authors is that a longer time to diagnosis was associated with worse outcomes. The average duration between the onset of symptoms and the diagnosis of lupus was almost four years. The longer the time to diagnosis, the higher […]

Walk Ambassador Donna Emery

2021 Virtual run, WALK, ride ambassador, Donna Emery. Team captain of Lupus Fighters 2021. What kind of lupus do you have?My Lupus is called SLE, Systemic Lupus Erythematosus. When was lupus diagnosis?1999 by my doctor, Dr. Neompoceno. How long did it take for a correct diagnosis?Wow! Good question. I believe it was several years before […]

Walk Ambassador LaShon Gurrola

2021 Virtual run, WALK, ride ambassador, LaShon Gurrola. Team captain of Rush’ing Stars and is also on the LSI Associate Board team. LaShon is an LSI support group leader to the Rush University Medical Center and Elmhurst-Edwards Hospital. How did you first become involved in the Illinois Lupus Walk and the Virtual run Walk ride?I […]

Walk Ambassador Regina Casto

2021 Virtual run, WALK, ride ambassador, Regina Casto. Team captain of Paco’s Posse for 15 years!! What is your connection to lupus?My father BKA Paco When was the lupus diagnosis?1978 How long did it take for a correct diagnosis?2 years (Funny story my dad took one of us to the pediatrician and after talking to […]

Walk Ambassador Ailda Nika, MD

2021 Virtual run, WALK, ride ambassador, Ailda Nika, MD. Team captain of the Rush’ing Stars. Dr. Nika sees patients through the Rush Lupus Clinic and is instrumental in the annual LSI-RUSH Lupus Clinic Patient Education Event. What is your connection to lupus?I treat Lupus When did you first become aware of lupus in a personal […]

ROBERT KATZ, M.D. ELECTED CHAIR, LUPUS SOCIETY OF ILLINOIS BOARD OF DIRECTORS

Dr. Katz takes leadership role after decades-long commitment to the lupus community (CHICAGO, IL−May 11, 2021)- Dr. Robert S. Katz has been elected Chairman of the Board of the Lupus Society of Illinois. Dr. Katz has a long history of work with lupus organizations. He has been Chairman of the Medical Advisory Board of the […]

Walk Ambassador Stacey Kennedy-Conner

2021 Virtual run, WALK, ride ambassador, Stacey Kennedy-Conner. Team captain of Stacey’s Lifesavers and supporter of the LSI Associate Board team. What kind of lupus do you have?Systemic Lupus Erythematosus and Discoid lupus Erythematosus When was lupus diagnosis?July 3, 2003 How long did it take for a correct diagnosis?Less than 1 year How has your […]

Aurinia Announces Publication of AURORA 1 Phase 3 Study Results with LUPKYNIS™ (voclosporin) in The Lancet

“Lupus nephritis can be a devastating condition if not diagnosed and managed early,” stated Brad H. Rovin, M.D., Professor of Medicine and the Director of the Division of Nephrology, Ohio State University Wexler Medical Center, an AURORA clinical trial investigator and the lead author of the publication. “The publication of AURORA 1 data validates the importance of voclosporin (LUPKYNIS) in early disease intervention for LN. These data establish voclosporin as an efficacious and safe, rapid-acting new treatment option for patients in need.”

Walk Ambassador Kay Mimms

2021 Virtual run, WALK, ride ambassador, Kay Mimms. Team captain and Lupus Warrior for K’s Hope for a Cure. What kind of lupus do you have?Systemic Lupus Erythematosus, or lupus, is a chronic (long-lasting) autoimmune disease that can damage any part of the body. How long did it take for a correct diagnosis?I have suffered […]

Walk Ambassador Robert Knapel

2021 walk Virtual run, WALK, ride ambassador, Robert Knapel. Team captain and President to the Lupus Society of IL Associate Board. What is your connection to lupus?My wife has lupus, and I am co-President of the LSI Associate Board. The Associate Board hosts a number of events (pre-Covid) to raise awareness about Lupus including Trivia […]

Walk Ambassador Mari Gonzalez

2021 Virtual run, WALK, ride ambassador, Mari Gonzalez. Team captain to the Lupus Spoons- Mari’s Majestic Mariposas and support group leader for the Lupus Spoons & Lupus Spoons 2.0. What kind of lupus do you have?SLE When was lupus diagnosis?Oct. 9, 2012 How long did it take for a correct diagnosis?About 1.5 months How has […]

Meet LaShon Gurrola

Mother, Nana, Registered Nurse and Lupus Warrior Recently, LSI found out Support Group Leader LaShon Gurrola, who is already a Registered Nurse, is going back to school to become a Family Nurse Practitioner (FNP)! Going back to school while working and supporting the lupus community is a huge undertaking. We asked LaShon to share her […]

Should People with Lupus Take the COVID-19 Vaccine?

By Dr. Robert Katz It is advisable that people with lupus take the COVID vaccine as soon as it becomes available to them. On December 11, 2020, the U.S. Food and Drug Administration issued the first emergency use authorization (EUA) for a vaccine for the prevention of coronavirus disease 2019 (COVID-19) caused by severe acute […]

A Patient Asks: What is lupus remission?

LSI received the following question.  Medical Advisory Board members answer these questions.  If you have a question, please forward it to info@lupusil.org or call 312-542-0002. Thanks to Dr. Meenakshi Jolly for providing the answer to this patient’s question. Remission is defined in various ways. For lupus, we use treat to target definition of how well […]

Lupus Research Update –

Discussing the recent article: Incomplete Systemic Lupus Erythematosus: What Remains After Application of American College of Rheumatology and Systemic Lupus International Collaborating Clinics Criteria? Dr. Ailda Nika shared this article wtih readers. Check lupusil.org for more “Latest News” for the lupus community. Discussing the recent article: Incomplete Systemic Lupus Erythematosus: What Remains After Application of American College […]

Lupus & COVID-19-An Update

Dr. Robert KatzProfessor of Medicine Rush University Medical CenterNorthwestern University’s Feinberg School of MedicineChairman Medical Advisory Board, Lupus Society of Illinois Dr. Ben Small Northwestern University’s Feinberg School of Medicine COVID-19 stands for a specific type of coronavirus disease that began in 2019. CO is for corona, VI for virus and D for disease. Many lupus patients […]

COVID-19 & Hydroxychloroquine

By Dr. Rosalind Ramsey Goldman Solovy Arthritis Research Society Research Professor at Northwestern Medical This article was written in response to published articles like the the one on newsweek here. There are no studies that have looked at whether or not using hydroxychloroquine will prevent the infection with the COVID-19 virus. However, we are recommending […]

Lupus & COVID-19

By Dr. Robert Katz About COVID-19 & lupus COVID-19 is a coronavirus – one of a large family of viruses that are common in people and many different species of animals.  80% of people who contract the virus will have mild symptoms.  COVID-19 began in Wuhan, Hubei Province, China and has since spread to many […]

Share Your Lupus Story

The National Collaborative for Education to Address the Social Determinants of Health (NCEAS) is planning for their annual conference in April here in Chicago. This will include a Story Slam session. For those not familiar, Story Slams are events that celebrate storytelling by providing an opportunity for participants to verbally share brief stories with an […]

GSK announces positive headline results in phase 3 study of Benlysta in patients with lupus nephritis

Article courtesy of GSK GSK today announced positive headline results for intravenous (IV) Benlysta (belimumab) in the largest controlled phase 3 study in active lupus nephritis (LN), an inflammation of the kidneys caused by systemic lupus erythematosus (SLE) which can lead to end-stage kidney disease. BLISS-LN achieves primary endpoint and all major secondary endpoints On-track […]

Lupus Research Update – 2 Positive Lupus Trials published in December

Dr. Ailda Nika shared this article wtih readers. Check lupusil.org for more “Latest News” for the lupus community. Breaking news in the Lupus World! While there is substantial unmet need for people with lupus given the limitations of therapeutic agents, two positive trials just came out in the month of December. First Biogen, a pharmaceutical company based […]

Lupus Research Update – Kidney Lupus

Dr. Robert Katz shared this article with readers.  Check lupusil.org for more “Latest News” for the lupus community In an article from China about predictors of a treatment response in patients with active kidney lupus, a reduction in urine protein levels and improvement in blood albumin levels at the third month were valuable for predicting […]

HONORING A LUPUS WARRIOR

Family Walks for Sister & Daughter who lost her battle with lupus honored as 2019 Chicago Lupus Walk Ambassador! CHICAGO, IL, September, 2019 – The Chicago Illinois Lupus Walk Ambassadors are Yadira Rangel & Sara Musa-Rosario of team Mariam’s Crew. “We are proud to recognize Yadira, Sara and team Mariam’s Crew with this well deserved […]

Study of Omega-3 Replacement with Krill Oil in Treatment of Systemic Lupus Erythematosus

Clinical Trial Title: Study to assess clinical benefit of omega-3 replacement with krill oil in disease management of SLE. Clinical Trial Protocol ID: 18022805Clinical Trial Investigator Name: Meenakshi Jolly, MD Clinical Trial Protocol Description: The study is a 24 week randomized, double-blind controlled multicenter study followed by an open label extension treatment for another 24 […]

Courtney Wulf of South Elgin Named Lupus Walk Ambassador

Lupus Warrior Educates the Community about Lupus The 14th Annual Western Suburbs Lupus Walk will feature lupus warrior Courtney Wulf as ambassador. “My goal is to increase awareness about lupus, especially to newly diagnosed patients,” Courtney says. Her priority is newly diagnosed patients, “My hope is to provide newly diagnosed patients the information and support […]

Lupus & Pregnancy

Lupus in pregnancy is a great question. Women with lupus thinking about having a baby will have additional concerns. The Lupus Community Navigator received a question about lupus and pregnancy and we reached out to Dr. Rosalind Ramsey-Goldman, MD, DrPH, Solovy/Arthritis Research Society Research Professor at Northwestern Medicine to answer the questions. Questions:What research, medication, […]

LEARNING TO LIVE WITH LUPUS IN A POSITIVE AND PRODUCTIVE WAY

By Kay Mimms For years, probably my whole life, I suffered with various symp¬toms that could have been related to lupus. My symptoms included cold hands and feet and sensitivity to cold (since I can remember); painful, sore, and swollen joints and muscles (since the 1960s); low blood count (1960s); extreme redness of eyes (since […]

Running a Marathon?

Dr. Robert Katz is Professor of Medicine at Rush Medical College and Northwestern University’s Feinberg School of Medicine. He is a leading expert in the field of Rheumatology, with experience in both research and patient care. Among his many honors and awards, Dr. Katz was named in U.S. News & World Report’s Top Doctor rankings, […]

Local Family Named Southern Suburbs Lupus Walk Ambassadors

Jennifer Finley and Michael Rakoczy, longtime advocates of LSI, lead 2019 South Suburbs Lupus Walk CHICAGO, IL, May 13, 2019 – A brother and sister were chosen as the 2019 Southern Suburbs Lupus Walk ambassadors in honor of their mother, Gayla, who lost her battle to lupus in 2001. Gayla’s Gang is the name of […]

Learning to Accept

By Jen Bouquet When were you first diagnosed with lupus? April 30, 2008 How long did it take for a correct diagnosis? 8 years Were you misdiagnosed first? I was not ‘misdiagnosed’ because I was never given any answer to the pain and fatigue I was experiencing. My journey officially began while I was pregnant […]

Living with Lupus in Medical School

​Stacey Jaimes-Herrera is a second year medical student at Loyola University Stritch School of Medicine. The following is a message she wrote to her class about her experience as a patient with lupus: Dear Class of 2020, I want to share my story with you because my experience has taught me a lot about patient […]

Practice patterns in longitudinal lupus care provision: patient and physician perspectives

Read the report here

Does SLE Care Provided in a Lupus Clinic Result in Higher Quality of Care than General Rheumatology

Dr. Meenakshi Jolly and team published in the 2018 April 2 Arthritis Care Research. Read the Abstract

Engaging African-American Females with Lupus in Community Focus Groups

Dr. Rosalind Ramsey Goldman’s team presented a poster at the 14th Annual Lewis Landsberg Research Day on Thursday, April 5, 2018 at the Robert H. Lurie Medical Research Center at Northwestern Memorial Hospital Feinberg Pavilion. Read the poster here. LSI assisted on this study and is included on the poster.

Body image in lupus

Body image in lupus: Is it disease activity, physical function, depression, pain, fatigue, sleep, fibromyalgia or stress? Dr. Meenakshi Jolly is an author on this recently published article in the International Journal of Clinical Rheumatology. Read the article here.

Clinical Study for People with Lupus – Enrolling Now

​The XSEL clinical research study for lupus is enrolling now at Northwestern Memorial Hospital In this study, we are inviting volunteers to test a new investigational treatment for lupus that’s unlike anything previously tested. If you qualify for and participate in the study, you may receive this investigational medication or placebo (inactive) treatment. To qualify, […]

Still Alive: Kayrene Mimms, Lupus Warrior

By Kayrene Mimms In our individual lives it’s easy to forget how similar we really are. (I’m not sure, but I think if each is stated, the verb would have to be singular). We all have relationships, delights, feelings, faults and sorrows. We all have bodies that protect hearts that beat and sometimes, whether or […]

Remembering Jacqueline Silva – Lupus Warrior

FOR IMMEDIATE RELEASE Family honors sister who lost her battle to lupus 10 years ago CHICAGO, IL, September, 2018 – Jacqueline Silva was diagnosed with lupus when she was 16 years old. She lived with the disease a little over 10 years before passing away on September 24, 2018. Her life, though short, touched many […]

Love Story Inspires at 2018 Western Suburbs Illinois Lupus Walk

FOR IMMEDIATE RELEASE Jim and Cheryl Vail share story of love and surviving lupus – together as Lupus Walk Ambassadors CHICAGO, IL, July – Lupus has been a part of Jim and Cheryl Vail’s love story since the very beginning. The teenagers fell in love in 1974. The next year, at 16, Cheryl was diagnosed […]

Local Advocate Named Ambassador for 2018 Northern Suburbs Lupus Walk

Kim Des Biens, longtime LSI supporter, named Northern Suburbs Lupus Walk Ambassador CHICAGO, IL, April 30 – This year, the Chicago Northern Suburbs will host the 11th annual Lupus Walk on May 6, 2018, with local LSI advocate Kim Des Biens as its ambassador. “Kim is a great Ambassador for the Northern Suburbs Illinois Lupus […]

Local Family Named 2018 Illinois Lupus Walk Ambassadors

FOR IMMEDIATE RELEASE Jennifer Finley and Michael Rakoczy, longtime advocates of LSI, lead 2018 South Suburbs Lupus Walk CHICAGO, IL, May 7, 2018 – A brother and sister were chosen as the 2018 Southern Suburbs Lupus Walk ambassadors in honor of their mother, Gayla, who lost her battle to lupus in 2001. Gayla’s Gang is […]

Local Teen Named Ambassador for Chicago’s 17th Annual Lupus Walk

FOR IMMEDIATE RELEASE Ambassador Maddie Handley and her family promote lupus awareness at annual walk CHICAGO, IL, Sept. 14 – This year, the Lupus Society of Illinois (LSI) in Chicago celebrates its 17th annual Lupus Walk on Sept. 24, 2017. 14-year-old Maddie Handley began her lupus journey two years ago, when she was diagnosed after […]

Local Teen Named Ambassador for Upcoming 2017 Western Suburbs Lupus Walk

FOR IMMEDIATE RELEASE Corrin Stines named Western Suburbs Lupus Walk Ambassador for the 2nd time CHICAGO, IL, July 5 – This year, the Chicago Western Suburbs will host the 12th annual Lupus Walk on August 12th, 2017, with local lupus advocate Corrin Stines serving as Lupus Walk Ambassador. Corrin was first named ambassador in 2013, […]

Local Advocate Named 2017 Northern Suburbs Lupus Walk Ambassador

FOR IMMEDIATE RELEASE Tara Joseph, Buffalo Grove resident and lupus advocate, named Northern Suburbs Lupus Walk Ambassador CHICAGO, IL, APRIL 19 – This year, Tara Joseph, lupus advocate, will serve as Ambassador to the 10th annual Lupus Walk on May 7th, 2017. “Tara’s strength and determination make her an excellent ambassador for the Northern Suburbs […]

Local Advocate Named 2017 Southern Suburbs Lupus Walk Ambassador

FOR IMMEDIATE RELEASE KANEFUS WALKER, Hazel Crest resident and lupus support group leader, named Southern Suburbs Lupus Walk Ambassador CHICAGO, IL, MAY 11 – This year, Kanefus Walker, lupus support group leader, will serve as Ambassador to the 9th annual Lupus Walk on May 20th, 2017. “Kanefus’s history of leadership in the lupus community and […]

Local Lupus Advocate named 2016 Chicago Walk Ambassador

FOR IMMEDIATE RELEASE Cody McSellers-McCray shines a spotlight for lupus fundraising and awareness CHICAGO, IL, September 12 – This month, Chicago will host its annual Lupus Walk and Fun Run on September 18th, 2016, led by local lupus advocate and this year’s ambassador, Cody McSellers-McCray. After more than a decade of painful symptoms, Cody was […]

Lupus Society of Illinois Rockford Area Support Group Names Ashley Mohr as the 2016 Lupus Day at the River Ambassador

July 27, 2016 – Ashley Mohr is a wife and mother of two amazingly awesome girls ages 8 and 5 years old. She was diagnosed with Lupus at the age of 24 after suffering from a stroke in 2013. The date she received her Lupus fighter ribbon was May 29, 2013. She was diagnosed with […]

Local Teen Named Ambassador for Upcoming Lupus Walk

FOR IMMEDIATE RELEASE Rachel Hampton, supported by her group LaLa’s for Lupus, named Western Suburbs Lupus Walk Ambassador CHICAGO, IL, July 18 – This year, the Chicago Western Suburbs will host the 11th annual Lupus Walk on August 13th, 2016, with local teen Rachel Hampton and her family as its ambassador. Diagnosed at age 8 […]

Local Family Named Illinois Lupus Walk Ambassadors 2016

FOR IMMEDIATE RELEASE Kevin Juggan, supported by his family team “Juggan’s Jaywalkers,” lead the 2016 Northern Suburbs Lupus Walk CHICAGO, IL, Apr. 7 – This year, the Lupus Society of Illinois (LSI) will host the 9th annual Northern Suburbs Illinois Lupus Walk on May 15th, 2016, with area resident Kevin Juggan and his family as […]

Local Teen Named Illinois Lupus Walk Ambassador 2016

Meaghan Fox, lifelong lupus patient, leads 2016 Southern Suburbs Lupus Walk CHICAGO, IL, Apr. 7 – This year, the Chicago Southern Suburbs will host its 8th annual Lupus Walk on May 21st, 2016, with local teen Meaghan Fox as its ambassador. Meaghan has been a lupus patient for most of her life and has committed […]

A Special Day: a lupus story

October 4, 2012 was a special day for Debra Lynch, an elementary school principal in the Lemont-Bromberek school district. She was planning a special lunch at school for the staff, to thank them for supporting her over the past year. But what she believed would be a small gathering of teachers turned into an all-school […]

Living with Lupus In Medical School

​Stacey Jaimes-Herrera is a second year medical student at Loyola University Stritch School of Medicine. The following is a message she wrote to her class about her experience as a patient with lupus: Dear Class of 2020, I want to share my story with you because my experience has taught me a lot about patient […]

Lupus Intervention Fatigue Trial (LIFT)

A major problem for people living with lupus is fatigue – chronic debilitating fatigue that significantly decreases quality of life and increases the risk of work disability. How does someone manage fatigue? Finding strategies that work for you and for lupus patients in general is the purpose of the Lupus Intervention Fatigue Trial (LIFT). Preliminary […]

FREE Educational Webinar Lupus Update with Dr. Rosalind Ramsey Goldman, MD, DrPH

WHO: People living with lupus and those that care about them Representatives from the Lupus Society of Illinois (LSI), the Midwest’s leading non-profit health organization dedicated to finding the causes and cure for lupus. Presenter: Dr. Rosalind Ramsey Goldman, MD, DrPH, Solovy Arthritis Research Society Research Professor at Northwestern Medical WHAT: Living with lupus is […]

Resources for Men with Lupus

Misconceptions exist that lupus is a women’s disease but 10% of lupus cases are men.  The fact is that anyone can get lupus, regardless of age, ethnicity or gender. Since 90% of lupus patients are women, it can be difficult for men to find the information and support they need.  The Lupus Society of Illinois […]

How to Find a Doctor to Diagnose and Treat Lupus

Finding a doctor to diagnose and treat lupus can be difficult.   The first step is of course getting a proper diagnosis. Unfortunately, there is not a definitive test for lupus test, (like there is for diabetes, for instance) and the average lupus diagnosis takes 4+ years and 3+ doctors.   Regardless, any medical doctor […]

Prescription Assistance

Lupus patients often find themselves on a variety of medications and if you don’t have insurance or if you are under-insured, finding the means to cover the costs adds up. There are several options available – be aware that most prescription assistance is based on need. Needy Medshttp://www.needymeds.org/NeedyMeds is a non-profit information resource devoted to […]

Transportation

Recently, the LSI was contacted with a question about transportation home from an out-patient service. The patient was told she could not drive herself home from the procedure. Hospitals may provide complimentary transportation from such a procedure. Contact your hospital directly for information. Some health insurance plans also include transportation for its members. Be sure […]

Statewide Support Opportunities

The LSI’s office is in Illinois and we serve the entire state of Illinois though our programs and services. To meet the needs of the nearly 28,000 square miles that comprise Illinois, LSI offers: The Lupus Community Navigator program is an opportunity for anyone in the lupus community to talk to someone about a lupus […]

Anti-Malarial Drugs & Lupus

Plaquenil (hydroxychloroquine), like Aralen (chloroquine) and Atabrine (quinacrine) are anti-malarial drugs used to treat lupus. These drugs were designed to treat malaria and during World War II, were discover to also treat symptoms of lupus – specifically muscle and joint pain, skin rashes, pericarditis, pleuritic, and other symptoms – like fatigue and fever. Anti-malarial medications […]

Lupus & the Lungs

An estimated 50% of people with lupus will develop lung disease at some point during the course of their disease. For people with lupus, symptoms like shortness of breath, chest pain – or pain in the chest area – pain in your lungs when you take a deep breath, dry cough, coughing that brings up […]

Legal Issues

LSI refers questions regarding disability to our past educational activities (click here) or to attorney Jeff Rabin at Rabin, Kodner & Brown. Jeff has been a long time supporter of the LSI and presented at numerous educational events. Other legal services available in Illinois include Illinois Legal Aid (http://www.illinoislegalaid.org/) In Cook County you can also […]

Medical Marijuana

In Illinois, it is now legal for people with lupus to get a prescription for Medical Marijuana. Anyone receiving Medical Marijuana in Illinois will have to have a Qualifying Patient Registry Identification Card issued through the state of Illinois. Applicants should discuss the use of medical cannabis with their treating physician before beginning an application. […]

Illinois Rehabilitation Services

The Lupus Community Navigator received a call inquiring about state services for residents on disability. The Illinois Department of Human Services – Rehabilitation Services (DRS) has 4 major bureaus – including the Bureau of Home Services that provides a wide range of services to individuals with the most significant disabilities to enable them to remain […]

Diagnosis Disputes: What to do when one doctor says you ahve lupus and another says you don’t

Diagnosis disputes can happen while you’re in the process of getting diagnosed or have been diagnosed for many years. Lupus is a difficult disease to diagnose. The tests available provide indications for lupus; there is no single test for lupus. The average lupus diagnosis can take many years. Sometimes a primary physician or an OBGYN […]

When should I tell my employer I have Lupus?

If you have a chronic and unpredictable illness like lupus, telling your employer can be challenging. Legally, you are not required to tell your employer about lupus. If you are working and become too sick to continue working, you may be able to take advantage of the Family Medical Leave Act (FMLA). The FMLA entitles […]

Lupus and Hair Loss

About 50% of people with lupus will experience hair loss at some point during the course of their disease. Hair loss can be a symptom of lupus or a side effect of some medications. If you have SLE, controlling the disease is the best way to avoid further hair loss and hair will usually grow […]

Dentistry: More Than Just Teeth

By Celia Mimms, DDS Taking care of one’s mouth and teeth is critical for lupus patients. Adding the dentist to your list of care providers could help you save your teeth and gums, as well as your life. Not only are dentists trained to provide care for tooth and gum related issues, their education also […]

Beware a Cure for Lupus

Every so often, LFAI becomes aware of a book, program, or product that claims to cure lupus. Some of the books look legitimate and cite studies to make their case. The hope for a cure for lupus might make any program look attractive – unfortunately it may be dangerous – particularly if the program advocates […]

Lupus & Chemo & Cancer

Although chemotherapy drugs can be used to treat lupus and cancer, lupus is not cancer. For some patients whose kidneys or central nervous systems are affected by lupus, a type of drug called an immunosuppressive may be used. Immunosuppressives, such as cyclophosphamide and mycophenolate mofetil, restrain the overactive immune system by blocking the production of […]

A Brighter View

By Laura Mills My late-20s and early-30s are now a blur, a jumble of stressful events that included a lupus diagnosis. Like much of what happened to me during that time, I hadn’t expected it. I already had a history of anemia and constantly-cold, color-changing hands; rashes after time in the sun; occasional redness on […]

Anti Malarial Drugs and Lupus

The Lupus Navigator recently received a question about Plaquenil. Plaquenil (hydroxychloroquine), like Aralen (chloroquine) and Atabrine (quinacrine) are anti-malarial drugs used to treat lupus.  These drugs were designed to treat malaria and during World War II, were discover to also treat symptoms of lupus – specifically muscle and joint pain, skin rashes, pericarditis, pleuritic, and […]

Illinois Window Tinting Law

Summertime can be a challenging time of year for people living with lupus. If you are photosensitive, this time of year can bring on extra challenges – exposure to UV light can increase lupus symptoms or bring on a flare. There are some tips to help you navigate the summer sun while being mindful of […]

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